A Swindon firefighter will take on a 48-hour running bonanza this weekend in order to raise much-needed funds for Avaya Powell, who is bravely fighting cancer.
In January 2020, five-year-old Avaya was diagnosed with a very rare but aggressive childhood cancer called Neuroblastoma which affects around 100 children every year.
Despite undertaking various treatments, Avaya now requires alternative treatment which isn’t available on the NHS.
This alternative treatment is going to cost Avaya’s family a fortune with several fund-raising events having already taken place.
Blunsdon resident Rhae Honey wanted to play her part after hearing about Avaya’s plight through her son’s pre-school, which has organised a host of fundraising events throughout March.
The fundraising campaign will start and finish at Blunsdon Pre-School on Friday at noon and will see Rhae run four miles, every four hours for 48 hours.
“My son goes to the local pre-school where the staff and parents, throughout March, organised various fundraising events for a beautiful, courageous little girl called Avaya who is fighting Neuroblastoma,” explained Rhae.
“Avaya has stage four cancer and has gone through various treatments but unfortunately it’s still not enough.
“The National Neuroblastoma panel are looking at alternative treatment, however it won’t be covered by the NHS.
“This treatment will come at a cost far beyond the families means and that’s why they need your help.
“As soon as I became aware of Avaya’s illness, I wanted to help save her life.
“Her story and her innocent beauty, pulled at my heart strings and being a mother made me hurt inside for Avaya and her family.
“I heard about a challenge that was well out of my comfort zone, which I knew would test me and adhered to COVID restrictions.
“I have decided to run four miles, every four hours for 48 hours (in total 48 miles) starting at midday on Friday and finishing at 8am on Monday, May 2nd, starting and finishing at Blunsdon Pre-School.
“As I am a firefighter, I felt it would be challenging and appropriate to run the last four miles in fire kit which I’m overjoyed to know I’ll be joined by other firefighters.
“I have set up a Go Fund Me page ‘Avaya’s fight against Neuroblastoma’ and would really appreciate everyone’s help and support.
“Please, if you live in the area and would like to join me on any of my runs, the company and support would mean the world to me and hopefully we can all pull together to raise as much money as possible.
“Please help to save Avaya’s life by donating to my Go Fund Me page.
“I believe if we all pull together, we can hopefully give Avaya the fighting chance she needs.”